FDA Approves Drug to Treat ALS
The U.S. Food and Drug Administration today approved Radicava (edaravone) to treat patients with amyotrophic lateral sclerosis (ALS). More...
The Kessenich Family ALS Center Receives Center of Excellence Designation
November 14, 2014
The University of Miami's Kessenich Family ALS Center continues to receive national recognition for the comprehensive care it provides to patients with amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease.
University of Miami News: The Kessenich Family ALS Center Receives Center of Excellence Designation
Dr. Michael Benatar awarded $6.24 Million NIH Grant for Creation of Rare Diseases Clinical Research Consortium
October 12, 2014
MIAMI, FL –The National Center for Advancing Translational Sciences and the National Institute of Neurological Disorders and Stroke have granted a $6.24 million cooperative agreement award to Dr. Michael Benatar for the establishment of a Rare Diseases Clinical Research Consortium. The consortium, to be called CReATe (Clinical Research in ALS and related disorders for Therapeutic development) will study amyotrophic lateral sclerosis (ALS) and other related rare diseases.
This unique collaborative effort will attempt to elucidate the relationship between phenotype and genotype in ALS and related disorders, search for new genetic causes of disease, identify genetic modifiers, and the development of biomarkers that may aid in therapy development.
For more details, please view the articles below.
University of Miami News: NIH Grants $6.24 Million Cooperative Agreement to University of Miami Neurologist
NIH Press Release
305 Films & ALS Recovery Fund Partner to Make ALS Movie "Who is Lou Gehrig?"
305 Films and the ALS Recovery Fund have teamed up to produce the short film "Who is Lou Gehrig?" taking audiences into the mind of Jeff Fogel; an active Miami native who was diagnosed with ALS three years ago. The movie follows Fogel's life with ALS but takes a unique approach by intertwining reality with Fogel's positive outlook and elaborate imagination as he goes about his daily routine.
The concept for the film was developed by Gil Green, a director with 305 Films and Fogel's friend of more than 20 years. Gil Green was inspired by how his friend has handled his diagnosis and by watching him continue to live his life despite his increasing physical limitations. Miami Heat Forward, Udonis Haslem has also become involved with the project and will be making his acting debut when Fogel envisions himself not only coaching his girl's basketball team, but the Miami Heat.
305 Films and the ALS Recovery Fund are raising money for the production of the film, with all additional funds going to the ALS Recovery Fund. Gil Green hopes Jeff Fogel's story "will inspire people faced with any obstacle in life." The film is estimated to be released in December 2014. To get involved, or to hear more about the production of the film from Green and Fogel, please visit the links below.
"WHO IS LOU GEHRIG?"Kickstarter Campaign
Udonis Haslem to make acting debut in short film "Who is Lou Gehrig?"
The Ice Bucket Challenge comes to the University of Miami. More …
Grand re-opening of the multi-disciplinary ALS clinic was held on October 9th, 2013.
The event was attended by our multi-disciplinary team, clinic support staff, research coordinators, the ALS Recovery Fund, representatives from the MDA and the Florida Chapter of the ALS Association, and other distinguished guests.
|Grand Re-Opening of the Multi-Disciplinary ALS Clinic
Bitner Plante Initiative launched in September 2013.
This exciting initiative, sponsored by the ALS Association Florida Chapter and the State of Florida Department of Health, will provide $1 million to support multi-disciplinary ALS clinics at the University of Miami, the Mayo Clinic in Jacksonville, the University of South Florida in Tampa and the University of Florida/Shands in Jacksonville in 2014. We are indebted to the hard work of Wendy Bitner (ALSA Florida Chapter Board Member) and Kim Hanna (president and CEO of the Florida Chapter) for their hard work in securing these state funds to support ALS patient care.
One of our patients with ALS was featured on NBC6 local news about voice banking.