Hundreds of researchers throughout the world are dedicated to finding the causes and cure for ALS. Progress in that effort depends on the involvement of ALS patients. We are part of that global research network here at the University of Miami. We encourage you to learn more about our research, and how you can get involved, by visiting the links below.
ALS Research Collaboration at the University of Miami
Here at the University of Miami, we conduct clinical trials to understand the causes of ALS, to develop better ways to track the disease, and to test new treatments. Full details, including how to get involved, are at the website.
Centers for Disease Control National ALS Registry
The National ALS Registry is a congressionally mandated registry for persons in the U.S. with ALS. It is the only population-based registry in the U.S. that collects information to help scientists learn more about who gets ALS and its causes. By joining the registry, you can contribute to research to fight ALS. Registration is free, entirely confidential, and carries no obligation.
Nationwide Clinical Trials Information
This site provides information on clinical trials throughout the country on ALS and hundreds of other disorders. For each, it indicates what is being tested, whether the trial is currently enrolling new patients, the location of the trial, and contact information. Search ALS trials at http://www.clinicaltrials.gov/ct2/results?term=amyotrophic+lateral+sclerosis&Search=Search
NEALS Clinical Trials Consortium
NEALS is a nationwide consortium of ALS clinical researchers which coordinates many of the large, multi-center trials of new therapies. We at the University of Miami are part of the NEALS consortium. The NEALS site has up-to-date information on ALS clinical trials, as well as “Clinical Trials 101,”
an overview of the kinds of clinical trials and how to get involved.